Using the Service

CSL Behring works with clinical trial sites who may provide you with information relating to clinical trials or your participation in clinical trials. You may use this website to access information from your clinical trial site relating to the clinical study in which you are a participant. CSL Behring is not responsible for the accuracy of any of the information provided by a clinical trial site found on this website. By accessing information on this website, you agree that any information you provide to, or access through this website is either yours, or that you have the authority to access it or use it. You may not use this website to gain unauthorized access to information, including anyone else's information, information from any clinical trial you are not participating in, or information relating to any other clinical trial participant.

You will need to use a user name and password to access the information on this website related to the clinical trial you in which you are a participant. If you give your user name and/or password to anyone else, that person could be able to view or access your personal information through this website. "Personal Information" is any information provided to the website that either by itself or with other information personally identifies you. Your Personal Information would include information like your name, address, information about your health, diagnoses, including information considered “personally identifiable information” or “protected health information” under applicable laws, rules or regulations.

CSL Behring may revise this website from time to time with new or different features or information. Any changes that CSL Behring makes will be considered part of this website. You acknowledge that there may also be events that are beyond CSL Behring’s control, including failures of telecommunications lines, which may cause disruptions in this website. By using this website, you agree that CSL Behring will not be liable for or responsible to you for any disruptions or failures of this website.

Description of Service

This website platform is developed by CSL Behring, the sponsor of the clinical study, and hosted by Anexinet Corporation CSL Behring’s hosting service provider. The information specific to your clinical trial appearing on this website is offered to you by your clinical trial site through a link provided to you. This website platform is designed to allow you to access information provided by your clinical trial site, your study doctor, and/or the clinical trial site staff, related to your participation in a clinical trial sponsored by CSL Behring. Any information relating to a clinical trial you are participating in must be approved by both your clinical trial site, and the institutional review board (IRB), who is responsible for assuring the rights and protection of study subjects in clinical research, prior to it being uploaded by your clinical trial site onto this website.

CSL Behring makes no warranty concerning the quality, accuracy, or completeness of the information provided to you by your clinical trial site, your study doctor, or the study staff through this website, and you agree that CSL Behring has no responsibility or liability for the information uploaded or maintained by your clinical trial site, your study doctor, or the study staff. Nothing contained herein precludes you from seeking to collect compensation for injury related to malpractice, fault, or blame on the part of those involved in clinical trial in which you participate. If you have any questions or concerns about your personal information or the information on this website relating to your clinical trial, please contact your study doctor or study staff at your clinical trial site. If you have any questions relating to your participation as a clinical trial research subject, please contact the IRB assigned to your clinical trial site.

By using this website, you agree to the terms of the most recent version of these Terms of Use. Please read our Privacy Policy in order to understand how your personal information may be used and disclosed by CSL Behring. Except as written in any other disclaimers, policies, terms of use, consents, or other notices on this website, these Terms of Use and the Privacy Policy are the complete agreement between you and CSL Behring with respect to your use of this website. You may, however, be subject to additional terms that may apply when you access particular services or materials on certain areas in this website, or by following a link from this website to other websites (which websites' terms of use and privacy policies you should review and consider separate and apart from CSL Behring's Terms of Use and Privacy Policy).

CSL Behring reserves the right to make additions, deletions, or modifications to these Terms of Use at any time without prior notification. Your use of this website constitutes your agreement to this right. Indicated at the bottom of these Terms of Use is the date when they were last updated.

 

Website Information

As a leading innovation-driven Pharmaceutical company, CSL Behring is committed to playing a major role in improving the quality of life for patients with rare and serious disorders. To facilitate the use of this website, we provide you with tailored information dependent upon the purpose of your respective visit, be it as a member of the general public, a potential or enrolled study subject, a healthcare professional, or a caregiver.

If you are participating in a clinical trial sponsored by CSL Behring, you may receive information and communication from your clinical trial site related to your participation in the clinical trial through this website. For information related to your participation in the clinical trial, you should consult your informed consent form, as well as other documents provided by your clinical trial site.

Any content available on this website is not a substitute for the professional judgment of a health care professional in diagnosing and treating patients or clinical trial participants. Neither content nor any other service offered through the website is intended to be substituted for medical diagnosis or treatment. CSL Behring is not responsible for the accuracy of any information or content provided or sent to you by your clinical trial site, your study doctor, or the clinical trial site staff. You are responsible for verifying the accuracy of any information you send or receive through this website, including any of your Personal Information, data, or records.

Please note that no information in this website is provided with the intention of nor should it be viewed as csl behring giving medical advice or instruction on the correct use of products manufactured or distributed by csl behring.

Any healthcare-related questions should be immediately reported to your study doctor, physician or other healthcare provider. Never disregard or delay seeking or following medical advice because of something you have read here. It is important to follow the advice of your study doctor and/or study staff, physician, and other health care professionals regarding your individual medical and health care needs. Please consult with your study doctor, physician, or other health care professional before using any drug product, including any investigational drug product, discussed within this website. CSL Behring is not engaged in rendering medical advice or services.

Scope of Use

Except for our website visitors’ downloading of a single copy of this website for personal, informational, non-commercial purposes, no content on this website is to be copied, downloaded, or stored for any other purpose, nor is such content to be disseminated to any party or for any purpose, without the express, written permission of CSL Behring. CSL Behring retains the right, at any time, without prior notice, and with or without cause, to restrict or terminate a visitor’s use of or access to this website.

No Guarantee or Warranty

Csl behring endeavors to keep this website up-to-date. However, the content on this website is provided without warranty of any kind either express or implied, including, but not limited to, any implied warranties of merchantability, fitness for a particular purpose, accuracy, completeness, and non-infringement. Content on this website is provided on an "as is" and "as available" basis. Csl behring makes no representations or warranties regarding this website and its content regarding accuracy, completeness, currency, or reliability, or that the use of this website will be uninterrupted or error-free. Visitors are responsible for the verification of any information before acting in reliance upon such information, and use of this website is at the sole risk of visitors to it. Visitors are also responsible for taking all precautions necessary to ensure that any content that is obtained is virus-free. To the extent that applicable state law restricts or limits implied warranties, one or more of the above limitations may not apply in particular cases.

Limitation of Liability

Except as otherwise in writing or as required by applicable law or regulation, csl behring specifically disclaims any liability, whether based in contract, tort, strict liability or otherwise, for any damages, whether direct, indirect, incidental, consequential, or special, arising out of or in any way connected with access to or use of this website and its content, regardless of whether or not csl behring has been advised of the possibility of such damages. This limitation of liability includes, but is not limited to, any reliance by any party on any content that is obtained directly or indirectly through the use of this website, as well as any damages that arise as a result of viruses, interruptions in telecommunications connections to the website, or delays, mistakes, or omissions in transmissions to or from the visitor, whether caused by theft, destruction, negligence, war, terrorism, acts of god, telecommunications failure, or any unauthorized access to the website or its information. Visitors use this website and its contents at their own risk. Nothing contained herein precludes you from seeking to collect compensation for any injury related to malpractice, fault, or blame on the part of those involved in research in which you participate.

Links to Other Websites

For the convenience of our visitors, CSL Behring provides links to other websites. However, certain links on this website lead to resources located on servers maintained by third parties over whom CSL Behring has no control. CSL Behring is not responsible for third party content or the consequences of one of our visitor’s use thereof; consequently, access to and use of such websites is at the risk of visitors to such websites. Such links do not and should not imply CSL Behring’s endorsement of material on any other website. CSL Behring expressly disclaims any liability with regard to access to such websites.

Hold Harmless

Visitors who violate any of the terms of these Terms of Use or otherwise misuse this website shall indemnify and hold harmless CSL Behring (including its officers, directors, employees, agents, and licensees) from any liability that arises from or is otherwise related to such violation and/or misuse, including but not limited to expenses, costs, and attorneys’ fees.

Expert Advice or Opinion

As a useful resource to our visitors, this website may contain expert opinions. Information in this website identified as expert opinion, or accessed from this website by hyperlink, represents the opinions of these respective experts, which are not necessarily those of CSL Behring. Such experts are not employees of CSL Behring and do not receive any compensation from CSL Behring for the use of their opinions. CSL Behring does not endorse, and is not responsible for, the accuracy or completeness of any information or opinions set forth in such materials. Please note that expert advice reflects only the personal view of that expert -- in no case shall it be regarded as the opinion or responsibility of CSL Behring.

Country-specific Product Information

CSL Behring provides information with respect to its global and local pharmaceutical business that might not be relevant to every visitor around the world. For example, trademarks used for certain products may differ from country to country. Furthermore, in some countries regulatory authorities may approve products for sale with different indications, dosages, and restrictions. If CSL Behring's products, programs and services mentioned in this website are not available in your country, any such reference does not imply that CSL Behring intends to announce these products, programs, or services in your country. Consult your local CSL Behring contact or your physician for further information as to the availability of our products in your country. Due to laws specific to different jurisdictions, we may not be able to provide all visitors with information on our prescription drugs. CSL Behring intends to disclose country-specific product information primarily to healthcare professionals and, only where permissible, to the general public.

Communities

In any forum for discussion on this website, CSL Behring expects the participants to observe common rules for communication, such as mutual respect for others. Visitors must not distribute or publish any offensive, abusive, indecent, defamatory, or obscene material or any material that breaches a third party’s intellectual property rights.Read our Social Media Community Guidelines.

Information Deemed Non-Confidential

Unless stated otherwise in our Privacy Policy or your informed consent forms, any communication from you to CSL Behring or its hosting provider, Anexinet Corporation via this website shall be deemed to be non-confidential and non-proprietary. Subject to applicable laws, CSL Behring shall be free to use any such information, including but not limited to ideas, concepts, know-how, or techniques, contained in such communication for any purpose, without compensation to you and without identifying the source, and you grant to CSL Behring the irrevocable right to copy, modify, publish, perform, transmit, and display such information via any media in accordance with these Terms of Use. You agree that any communication from you to CSL Behring will be submitted or otherwise provided to CSL Behring in accordance with applicable law, including but not limited to, obtaining any necessary consents or authorizations from individuals prior to the submission of health or other personal information. You will not submit anything to this website that contains any viruses or other software that may adversely affect the operation of this website, or another party’s computer or information system.

Intellectual Property

Please note that it is CSL Behring's policy to enforce its intellectual property rights to the utmost extent as set forth in applicable laws, including criminal sanctions. The trademarks, logos, and service marks (collectively the "Trademarks") displayed on this website are Trademarks owned or licensed by CSL Behring. Nothing on this website should be construed as granting, by implication or otherwise, any license or right in or to the Trademarks without the express written permission of CSL Behring or, if not CSL Behring, the owner of the Trademark. In addition, any reproduction, retransmission, modification or use of this website's content for other than personal, non-commercial purposes requires the prior written consent of CSL Behring. The following copyright notice must appear on every copy of the contents of this website or a portion thereof: Copyright © 2021 CSL Behring.

News Releases

This website may link to CSL Behring websites that contain press releases and other news regarding CSL Behring, which CSL Behring believed to be accurate as of the date that it was prepared and/or posted on this website. Nevertheless, CSL Behring hereby disclaims any obligation to update such press releases and other news, and/or the information contained therein. In no event should any information about companies, other than CSL Behring, be relied upon as having been provided by CSL Behring, nor does the appearance of such information about other companies on this website constitute an endorsement by CSL Behring of the accuracy or completeness of such information.

Security Obligations of Visitors

In some cases, visitors to this website may be required to register or to obtain a password prior to gaining access to certain provisions of the website or to certain services provided by the website. If so, it is the responsibility of the visitor to ensure that the confidentiality of the registration information and password is maintained. The visitor shall be responsible for all uses of such password, whether or not the visitor has authorized such use.

Applicable Laws

These terms of use and the resolution of any dispute related to these terms of use shall be construed in accordance with the laws of the Commonwealth of Pennsylvania. Any dispute between CSL Behring and you related to these terms of use or this website shall be resolved exclusively by the state and federal courts of the Commonwealth of Pennsylvania.

This website can be accessed from the United Stated and other countries worldwide. Since the laws of each State or country may differ, you agree that the statutes and laws of the Commonwealth of Pennsylvania, without regard to any principles of conflicts of law, will apply to all matters relating to the use of this website.

Last updated: February 2021